As an expert by experience (EBE), you bring your own, unique lived experience of eating disorders, using eating disorder services, or supporting someone with an eating disorder to contribute towards a co-production project to ensure the voices of service users, carers & families are heard.
One of my favourite things about this role, besides knowing that it will help people, is the sense of community created and the platform for our voices to be heard. I felt so empowered sharing my story and hearing my fellow volunteers share theirs. It was a privilege to be so trusted. This experience helped us all to feel that we have never been and never will be alone.
There are many things that an EBE does within a project, such as:
Benefits of being an EBE
Becoming an EBE is an exciting opportunity to make positive change to eating disorders treatment, care, prevention and support across the UK!
By becoming a member, you will receive:
Current opportunities
Researchers at the University of Cumbria are looking into those who have experienced restrictive practices as part of their care.
Researchers are looking for young people, 16-21, to join EDCRN's panel to improve eating disorder research and treatment.